1st ESE Hypoparathyroidism Patient Forum
Geplaatst: 10 mar 2022, 16:29
The event is organised within the Hypoparathyroidism Patient Forum project run by ESE, in collaboration with representatives of patient support groups from across Europe.
ESE has embarked on a journey to establish a patient forum, recognising the need to better understand the unmet needs of patients with rare disorders, and the wide variability in access to optimal care across Europe. Through the project, we are looking for opportunities to bring patients and patient organisations closer to ESE, to work jointly on advocating for a better care, management and treatment of people living with hypoparathyroidism across Europe.
https://www.ese-hormones.org/events-dea ... ient-forum
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ESE has embarked on a journey to establish a patient forum, recognising the need to better understand the unmet needs of patients with rare disorders, and the wide variability in access to optimal care across Europe. Through the project, we are looking for opportunities to bring patients and patient organisations closer to ESE, to work jointly on advocating for a better care, management and treatment of people living with hypoparathyroidism across Europe.
https://www.ese-hormones.org/events-dea ... ient-forum
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